Numbers
RARE Disease Facts
You are not alone. These RARE facts show the impact of rare disease. Share these statistics with your communities to let them know that RARE really is everywhere.
RARE Diseases Impact More People Than
Cancer and AIDS Combined
People are Affected by Rare Disease
Rare Diseases Don’t Have a Foundation or Research Support Groups
Patients Diagnosed with a Rare Disease is a Child
Children with a Rare Disease Won’t Live to See Their 5th Birthday
Million People Suffer From a Rare Disease Globally
Rare Diseases are Genetic
The Average Time it Takes for Rare Patients to Receive an Accurate Diagnosis https://everylifefoundation.org/delayed-diagnosis-study/
of Rare Diseases Lack an FDA Approved Treatment
Distinct types of Rare and Genetic Diseases
The economic impact of a delayed diagnosis is up to $517,000 in avoidable costs per patient.